{"@context":{"@vocab":"https://cir.nii.ac.jp/schema/1.0/","rdfs":"http://www.w3.org/2000/01/rdf-schema#","dc":"http://purl.org/dc/elements/1.1/","dcterms":"http://purl.org/dc/terms/","foaf":"http://xmlns.com/foaf/0.1/","prism":"http://prismstandard.org/namespaces/basic/2.0/","cinii":"http://ci.nii.ac.jp/ns/1.0/","datacite":"https://schema.datacite.org/meta/kernel-4/","ndl":"http://ndl.go.jp/dcndl/terms/","jpcoar":"https://github.com/JPCOAR/schema/blob/master/2.0/"},"@id":"https://cir.nii.ac.jp/crid/1360017286988730624.json","@type":"Article","productIdentifier":[{"identifier":{"@type":"DOI","@value":"10.1177/02692163211043372"}},{"identifier":{"@type":"URI","@value":"https://journals.sagepub.com/doi/pdf/10.1177/02692163211043372"}},{"identifier":{"@type":"URI","@value":"https://journals.sagepub.com/doi/full-xml/10.1177/02692163211043372"}}],"dc:title":[{"@value":"Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic"}],"description":[{"type":"abstract","notation":[{"@value":"<jats:sec>\n                    <jats:title>Background:</jats:title>\n                    <jats:p>The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure.</jats:p>\n                  </jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:</jats:title>\n                    <jats:p>To investigate grief experiences, support needs and use of formal and informal bereavement support among people bereaved during the pandemic.</jats:p>\n                  </jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:</jats:title>\n                    <jats:p>Baseline results from a longitudinal survey. Support needs and experiences of accessing support are reported using descriptive statistics and thematic analysis of free-text data.</jats:p>\n                  </jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting/participants:</jats:title>\n                    <jats:p>711 adults bereaved in the UK between March and December 2020, recruited via media, social media, national associations and community/charitable organisations.</jats:p>\n                  </jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:</jats:title>\n                    <jats:p>\n                      High-level needs for emotional support were identified. Most participants had not sought support from bereavement services (59%,\n                      <jats:italic toggle=\"yes\">n</jats:italic>\n                      = 422) or their General-Practitioner (60%,\n                      <jats:italic toggle=\"yes\">n</jats:italic>\n                      = 428). Of participants who had sought such support, over half experienced difficulties accessing bereavement services (56%,\n                      <jats:italic toggle=\"yes\">n</jats:italic>\n                      = 149)/General-Practitioner support (52%,\n                      <jats:italic toggle=\"yes\">n</jats:italic>\n                      = 135). About 51% reported high/severe vulnerability in grief; among these, 74% were not accessing bereavement or mental-health services. Barriers included limited availability, lack of appropriate support, discomfort asking for help and not knowing how to access services. About 39% (\n                      <jats:italic toggle=\"yes\">n</jats:italic>\n                      = 279) experienced difficulties getting support from family/friends, including relational challenges, little face-to-face contact and disrupted collective mourning. The perceived uniqueness of pandemic bereavement and wider societal strains exacerbated their isolation.\n                    </jats:p>\n                  </jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:</jats:title>\n                    <jats:p>People bereaved during the pandemic have high levels of support needs alongside difficulties accessing support. We recommend increased provision and tailoring of bereavement services, improved information on support options and social/educational initiatives to bolster informal support and ameliorate isolation.</jats:p>\n                  </jats:sec>"}]}],"creator":[{"@id":"https://cir.nii.ac.jp/crid/1380017286988730639","@type":"Researcher","foaf:name":[{"@value":"Emily Harrop"}],"jpcoar:affiliationName":[{"@value":"Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730632","@type":"Researcher","foaf:name":[{"@value":"Silvia Goss"}],"jpcoar:affiliationName":[{"@value":"Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730630","@type":"Researcher","foaf:name":[{"@value":"Damian Farnell"}],"jpcoar:affiliationName":[{"@value":"School of Dentistry, Cardiff University, Cardiff, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730628","@type":"Researcher","foaf:name":[{"@value":"Mirella Longo"}],"jpcoar:affiliationName":[{"@value":"Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730629","@type":"Researcher","foaf:name":[{"@value":"Anthony Byrne"}],"jpcoar:affiliationName":[{"@value":"Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730637","@type":"Researcher","foaf:name":[{"@value":"Kali Barawi"}],"jpcoar:affiliationName":[{"@value":"Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730638","@type":"Researcher","foaf:name":[{"@value":"Anna Torrens-Burton"}],"jpcoar:affiliationName":[{"@value":"PRIME Centre, Division of Population Medicine, Cardiff University, Cardiff, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730633","@type":"Researcher","foaf:name":[{"@value":"Annmarie Nelson"}],"jpcoar:affiliationName":[{"@value":"Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730640","@type":"Researcher","foaf:name":[{"@value":"Kathy Seddon"}],"jpcoar:affiliationName":[{"@value":"Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730625","@type":"Researcher","foaf:name":[{"@value":"Linda Machin"}],"jpcoar:affiliationName":[{"@value":"Keele University, Keele, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730634","@type":"Researcher","foaf:name":[{"@value":"Eileen Sutton"}],"jpcoar:affiliationName":[{"@value":"Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730626","@type":"Researcher","foaf:name":[{"@value":"Audrey Roulston"}],"jpcoar:affiliationName":[{"@value":"Queen’s University, Belfast, Northern Ireland, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730635","@type":"Researcher","foaf:name":[{"@value":"Anne Finucane"}],"jpcoar:affiliationName":[{"@value":"Clinical Psychology, School of Health in Social Science, University of Edinburgh, Edinburgh, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730627","@type":"Researcher","foaf:name":[{"@value":"Alison Penny"}],"jpcoar:affiliationName":[{"@value":"National Bereavement Alliance/Childhood Bereavement Network, London, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730631","@type":"Researcher","foaf:name":[{"@value":"Kirsten V Smith"}],"jpcoar:affiliationName":[{"@value":"Centre for Anxiety Disorders and Trauma, Department of Experimental Psychology, University of Oxford, Oxford, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730624","@type":"Researcher","foaf:name":[{"@value":"Stephanie Sivell"}],"jpcoar:affiliationName":[{"@value":"Marie Curie Palliative Care Research Centre, Division of Population Medicine, Cardiff University, Cardiff, UK"}]},{"@id":"https://cir.nii.ac.jp/crid/1380017286988730636","@type":"Researcher","foaf:name":[{"@value":"Lucy E Selman"}],"jpcoar:affiliationName":[{"@value":"Palliative and End of Life Care Research Group, Population Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK"}]}],"publication":{"publicationIdentifier":[{"@type":"PISSN","@value":"02692163"},{"@type":"EISSN","@value":"1477030X"}],"prism:publicationName":[{"@value":"Palliative Medicine"}],"dc:publisher":[{"@value":"SAGE Publications"}],"prism:publicationDate":"2021-10-22","prism:volume":"35","prism:number":"10","prism:startingPage":"1985","prism:endingPage":"1997"},"reviewed":"false","dc:rights":["https://creativecommons.org/licenses/by/4.0/","https://journals.sagepub.com/page/policies/text-and-data-mining-license"],"url":[{"@id":"https://journals.sagepub.com/doi/pdf/10.1177/02692163211043372"},{"@id":"https://journals.sagepub.com/doi/full-xml/10.1177/02692163211043372"}],"createdAt":"2021-10-22","modifiedAt":"2026-01-05","relatedProduct":[{"@id":"https://cir.nii.ac.jp/crid/1360580232175725952","@type":"Article","resourceType":"学術雑誌論文(journal article)","relationType":["isReferencedBy"],"jpcoar:relatedTitle":[{"@value":"The educational value of sense of coherence for grief care"}]}],"dataSourceIdentifier":[{"@type":"CROSSREF","@value":"10.1177/02692163211043372"},{"@type":"CROSSREF","@value":"10.3389/fpsyg.2022.1037637_references_DOI_4UoqEAorC6c5srFUU1VVjNdpvyn"}]}