{"@context":{"@vocab":"https://cir.nii.ac.jp/schema/1.0/","rdfs":"http://www.w3.org/2000/01/rdf-schema#","dc":"http://purl.org/dc/elements/1.1/","dcterms":"http://purl.org/dc/terms/","foaf":"http://xmlns.com/foaf/0.1/","prism":"http://prismstandard.org/namespaces/basic/2.0/","cinii":"http://ci.nii.ac.jp/ns/1.0/","datacite":"https://schema.datacite.org/meta/kernel-4/","ndl":"http://ndl.go.jp/dcndl/terms/","jpcoar":"https://github.com/JPCOAR/schema/blob/master/2.0/"},"@id":"https://cir.nii.ac.jp/crid/1361137045226466304.json","@type":"Article","productIdentifier":[{"identifier":{"@type":"DOI","@value":"10.1200/jco.2002.07.093"}},{"identifier":{"@type":"URI","@value":"https://ascopubs.org/doi/pdfdirect/10.1200/JCO.2002.07.093"}}],"dc:title":[{"@value":"Measuring Health-Related Quality of Life in Patients With Hepatobiliary Cancers: The Functional Assessment of Cancer Therapy–Hepatobiliary Questionnaire"}],"description":[{"type":"abstract","notation":[{"@value":"<jats:p> PURPOSE: This is the first report on the development and initial validation of the Functional Assessment of Cancer Therapy–Hepatobiliary (FACT-Hep) questionnaire, a 45-item self-report instrument designed to measure health-related quality of life (HRQL) in patients with hepatobiliary cancers. The FACT-Hep consists of the 27-item FACT-G, which assesses generic HRQL concerns, and the newly validated 18-item Hepatobiliary Subscale (HS), which assesses disease-specific issues. </jats:p><jats:p> PATIENTS AND METHODS: The development of the HS followed a four-phase process of item generation, item reduction, scale construction, and reliability/validity testing. Two independent samples were studied: item generation (sample 1; n = 30) and reliability/validity testing (sample 2; n = 51). </jats:p><jats:p> RESULTS: In sample 2, all subscales and aggregated scores showed high internal consistency at initial assessment (Cronbach’s alpha range, 0.72 to 0.94) and retesting (Cronbach’s alpha range, 0.81 to 0.94). Measurement stability over a 3- to 7-day period was also high for all aggregated scales (test-retest correlation range, 0.84 to 0.91; intraclass correlation coefficient range, 0.82 to 0.90). Convergent and divergent validity were demonstrated by examining relationships between FACT subscales and mood, social support, and social desirability. Finally, when performance status and treatment status were used to divide sample 2, the HS differentiated groups to a degree comparable to the Physical and Functional Well-Being subscales of the FACT-G, thereby contributing favorably to a 32-item Trial Outcome Index. In addition to the 18 validated, scored items in the HS, seven treatment-related items may be appended, if clinically indicated, as a separate subscale. </jats:p><jats:p> CONCLUSION: The 45-item FACT-Hep can be used independently as a brief measure of disease-related symptoms and functioning. Alone or paired with the FACT-G, the HS has promise for use in assessing the disease-specific HRQL of patients with hepatobiliary cancers. </jats:p>"}]}],"creator":[{"@id":"https://cir.nii.ac.jp/crid/1380848661767182469","@type":"Researcher","foaf:name":[{"@value":"Nancy Heffernan"}],"jpcoar:affiliationName":[{"@value":"From the Hepatobiliary Disease Management Program, Memorial Sloan-Kettering Cancer Center, and Beth Israel Medical Center, New York, and Jacobi Medical Center, Bronx, NY; Evanston Northwestern Healthcare and Northwestern University, Evanston, IL; and Community Cancer Care, Indianapolis, IN."}]},{"@id":"https://cir.nii.ac.jp/crid/1381137045226466441","@type":"Researcher","foaf:name":[{"@value":"David Cella"}],"jpcoar:affiliationName":[{"@value":"From the Hepatobiliary Disease Management Program, Memorial Sloan-Kettering Cancer Center, and Beth Israel Medical Center, New York, and Jacobi Medical Center, Bronx, NY; Evanston Northwestern Healthcare and Northwestern University, Evanston, IL; and Community Cancer Care, Indianapolis, IN."}]},{"@id":"https://cir.nii.ac.jp/crid/1381137045226466433","@type":"Researcher","foaf:name":[{"@value":"Kimberly Webster"}],"jpcoar:affiliationName":[{"@value":"From the Hepatobiliary Disease Management Program, Memorial Sloan-Kettering Cancer Center, and Beth Israel Medical Center, New York, and Jacobi Medical Center, Bronx, NY; Evanston Northwestern Healthcare and Northwestern University, Evanston, IL; and Community Cancer Care, Indianapolis, IN."}]},{"@id":"https://cir.nii.ac.jp/crid/1381137045226466437","@type":"Researcher","foaf:name":[{"@value":"Linda Odom"}],"jpcoar:affiliationName":[{"@value":"From the Hepatobiliary Disease Management Program, Memorial Sloan-Kettering Cancer Center, and Beth Israel Medical Center, New York, and Jacobi Medical Center, Bronx, NY; Evanston Northwestern Healthcare and Northwestern University, Evanston, IL; and Community Cancer Care, Indianapolis, IN."}]},{"@id":"https://cir.nii.ac.jp/crid/1381137045226466436","@type":"Researcher","foaf:name":[{"@value":"Mary Martone"}],"jpcoar:affiliationName":[{"@value":"From the Hepatobiliary Disease Management Program, Memorial Sloan-Kettering Cancer Center, and Beth Israel Medical Center, New York, and Jacobi Medical Center, Bronx, NY; Evanston Northwestern Healthcare and Northwestern University, Evanston, IL; and Community Cancer Care, Indianapolis, IN."}]},{"@id":"https://cir.nii.ac.jp/crid/1381137045226466434","@type":"Researcher","foaf:name":[{"@value":"Steven Passik"}],"jpcoar:affiliationName":[{"@value":"From the Hepatobiliary Disease Management Program, Memorial Sloan-Kettering Cancer Center, and Beth Israel Medical Center, New York, and Jacobi Medical Center, Bronx, NY; Evanston Northwestern Healthcare and Northwestern University, Evanston, IL; and Community Cancer Care, Indianapolis, IN."}]},{"@id":"https://cir.nii.ac.jp/crid/1381137045226466438","@type":"Researcher","foaf:name":[{"@value":"Marilyn Bookbinder"}],"jpcoar:affiliationName":[{"@value":"From the Hepatobiliary Disease Management Program, Memorial Sloan-Kettering Cancer Center, and Beth Israel Medical Center, New York, and Jacobi Medical Center, Bronx, NY; Evanston Northwestern Healthcare and Northwestern University, Evanston, IL; and Community Cancer Care, Indianapolis, IN."}]},{"@id":"https://cir.nii.ac.jp/crid/1381137045226466432","@type":"Researcher","foaf:name":[{"@value":"Yuman Fong"}],"jpcoar:affiliationName":[{"@value":"From the Hepatobiliary Disease Management Program, Memorial Sloan-Kettering Cancer Center, and Beth Israel Medical Center, New York, and Jacobi Medical Center, Bronx, NY; Evanston Northwestern Healthcare and Northwestern University, Evanston, IL; and Community Cancer Care, Indianapolis, IN."}]},{"@id":"https://cir.nii.ac.jp/crid/1381137045226466435","@type":"Researcher","foaf:name":[{"@value":"William Jarnagin"}],"jpcoar:affiliationName":[{"@value":"From the Hepatobiliary Disease Management Program, Memorial Sloan-Kettering Cancer Center, and Beth Israel Medical Center, New York, and Jacobi Medical Center, Bronx, NY; Evanston Northwestern Healthcare and Northwestern University, Evanston, IL; and Community Cancer Care, Indianapolis, IN."}]},{"@id":"https://cir.nii.ac.jp/crid/1381137045226466440","@type":"Researcher","foaf:name":[{"@value":"Leslie Blumgart"}],"jpcoar:affiliationName":[{"@value":"From the Hepatobiliary Disease Management Program, Memorial Sloan-Kettering Cancer Center, and Beth Israel Medical Center, New York, and Jacobi Medical Center, Bronx, NY; Evanston Northwestern Healthcare and Northwestern University, Evanston, IL; and Community Cancer Care, Indianapolis, IN."}]}],"publication":{"publicationIdentifier":[{"@type":"PISSN","@value":"0732183X"},{"@type":"EISSN","@value":"15277755"}],"prism:publicationName":[{"@value":"Journal of Clinical Oncology"}],"dc:publisher":[{"@value":"American Society of Clinical Oncology (ASCO)"}],"prism:publicationDate":"2002-05-01","prism:volume":"20","prism:number":"9","prism:startingPage":"2229","prism:endingPage":"2239"},"reviewed":"false","url":[{"@id":"https://ascopubs.org/doi/pdfdirect/10.1200/JCO.2002.07.093"}],"createdAt":"2002-07-27","modifiedAt":"2022-05-25","relatedProduct":[{"@id":"https://cir.nii.ac.jp/crid/1360571323609123200","@type":"Article","relationType":["isReferencedBy"],"jpcoar:relatedTitle":[{"@value":"Systematic review of the psychometric properties of disease‐specific, quality‐of‐life questionnaires for patients with hepatobiliary or pancreatic cancers"}]},{"@id":"https://cir.nii.ac.jp/crid/1360848661767182336","@type":"Article","resourceType":"学術雑誌論文(journal article)","relationType":["isReferencedBy"],"jpcoar:relatedTitle":[{"@value":"Association between chronological depressive changes and physical symptoms in postoperative pancreatic cancer patients"}]},{"@id":"https://cir.nii.ac.jp/crid/1360853567537948544","@type":"Article","resourceType":"学術雑誌論文(journal article)","relationType":["isReferencedBy"],"jpcoar:relatedTitle":[{"@value":"Health-related quality of life in patients that have undergone liver resection: A systematic review and meta-analysis"}]},{"@id":"https://cir.nii.ac.jp/crid/1390282679616077696","@type":"Article","relationType":["isReferencedBy"],"jpcoar:relatedTitle":[{"@language":"ja","@value":"膵切除術後3ヶ月の患者QOL検討からみた症状介入の方略"},{"@language":"en","@value":"Strategy of symptom-targeted intervention based on patient quality of life at three months after pancreatectomy"}]},{"@id":"https://cir.nii.ac.jp/crid/1390282679619405312","@type":"Article","resourceType":"学術雑誌論文(journal article)","relationType":["isReferencedBy"],"jpcoar:relatedTitle":[{"@language":"ja","@value":"膵癌患者の術後栄養状態とQOLの経時的評価"},{"@language":"en","@value":"Chronological evaluation of postoperative nutritional status and quality of life of pancreatic cancer patients"}]},{"@id":"https://cir.nii.ac.jp/crid/1390285300151641984","@type":"Article","resourceType":"学術雑誌論文(journal article)","relationType":["isReferencedBy"],"jpcoar:relatedTitle":[{"@language":"en","@value":"Factors associated with, and interventions to reduce, fatigue experienced by patients three months after pancreatectomy"},{"@language":"ja","@value":"膵切除術後3ヶ月の患者の倦怠感の関連因子"}]},{"@id":"https://cir.nii.ac.jp/crid/2051151842055104512","@type":"Article","resourceType":"学術雑誌論文(journal article)","relationType":["isReferencedBy"],"jpcoar:relatedTitle":[{"@value":"The relationship between liver cyst volume and QOL in Japanese ADPKD patients"}]}],"dataSourceIdentifier":[{"@type":"CROSSREF","@value":"10.1200/jco.2002.07.093"},{"@type":"CROSSREF","@value":"10.2958/suizo.30.654_references_DOI_FTUDUjZ02dhvirnrn2to4zvEXPG"},{"@type":"CROSSREF","@value":"10.1111/jjns.12188_references_DOI_FTUDUjZ02dhvirnrn2to4zvEXPG"},{"@type":"CROSSREF","@value":"10.1186/s13030-018-0132-1_references_DOI_FTUDUjZ02dhvirnrn2to4zvEXPG"},{"@type":"CROSSREF","@value":"10.2958/suizo.32.873_references_DOI_FTUDUjZ02dhvirnrn2to4zvEXPG"},{"@type":"CROSSREF","@value":"10.13105/wjma.v9.i1.88_references_DOI_FTUDUjZ02dhvirnrn2to4zvEXPG"},{"@type":"CROSSREF","@value":"10.2958/suizo.35.83_references_DOI_FTUDUjZ02dhvirnrn2to4zvEXPG"},{"@type":"CROSSREF","@value":"10.1007/s10157-019-01830-6_references_DOI_FTUDUjZ02dhvirnrn2to4zvEXPG"}]}