The reaction of parents to the birth and to their infant with a congenital malformation <Original Article>

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  • 先天奇形を持つ子どもの親の出産および子どもに対する反応に関する記述研究 <原著>
  • 先天奇形を持つ子どもの親の出産および子どもに対する反応に関する記述研究
  • センテン キケイ オ モツ コドモ ノ オヤ ノ シュッサン オヨビ コドモ ニ タイスル ハンノウ ニ カンスル キジュツ ケンキュウ

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Abstract

Purpose of this study was to describe the reaction of parents to the birth, and to their infant with a congenital malformation. This descriptive study was carried out on four groups: cleft lip and palate, hand and foot malformation, spina bifida, and trisomy2l. Data were collected via focus group interviews. Group members numbered from four to seven. Interviews were recorded on a tape recorder and decoded. Each group made a drawing of their reactions. Subjects had a positive reaction and attachment to their baby, while at the same time they were crushed with grief after birth. After a period of intense emotional upset, emotional instability followed for a year. Each group showed a unique emotional condition. 'Reorganization' was the start of living with their child constructively with feeling of worry and guilt.

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