Basic Research in Nursing Patients with Familial Amyloidotic Polyneuropathy (FAP) : Analysis of Nursing Record of those Patients who have not had a Liver Transplantation

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  • 家族性アミロイドポリニューロパチー(FAP)患者の看護における基礎的研究 : 肝臓移植を受けていない患者の看護記録の分析から
  • カゾク セイ アミロイドポリニューロパチー (FAP) カンジャ ノ カンゴ ニ オケル キソ テキ ケンキュウ : カンゾウ イショク オ ウケテ イナイ カンジャ ノ カンゴ キロク ノ ブンセキ カラ

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The purpose of this study is to identify some points to take into consideration when nursing patients with advanced Familial Amyloidotic Ployneuropathy (ATTR Val30Met) who have not had a liver transplantation. We analyzed the nursing records of four cooperating patients during their stay in the hospital. In regard to their clinical symptoms, all 4 patients showed clear symptoms of a dysautonomia and a peripheral neuropathy and other general bodily symptoms. Three of them were admitted to the hospital in order to have a pacemaker inserted. One of those three patients had a marked kidney disorder as well and was having dialysis. The other patient was staying in the hospital in order to receive treatment for malnutrition, orthostatic hypotension and diarrhea. Examination of the records identified the necessity for the nursing staff to provide assistance in all aspects of everyday activities including exercises, rest, food intake, excretion and hygiene as well as assistance in their medical treatment. However, it is also important for the staff to anticipate, and cope with, such symptoms as peripheral neuropathy and dysautonomia and other general bodily symptoms that may appear as the patients' conditions progress.

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