A literature study on experiences and emotions accompanying surrogacy decision-making by family members of elderly patients

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  • 高齢患者の家族による代理意思決定での経験と心情に関する文献研究
  • コウレイ カンジャ ノ カゾク ニ ヨル ダイリ イシ ケッテイ デ ノ ケイケン ト シンジョウ ニ カンスル ブンケン ケンキュウ

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This study aims to identify the characteristics of research trends and findings on the experiences and emotions accompanying surrogacy decision-making by family members in the health of elderly patients in Japan. We reviewed the literature published from 2015 to 2022. Of the reviewed literature, the analysis identified seven references meeting the criteria of paper type, research questions and participants. The research design of all the references was a qualitative study based on interviews. The main results of the analysis on experiences and emotions in proxy decision making by family members of elderly patients were divided into the following four categories: experiences and emotions in family crisis situations, experiences and emotions accompanying surrogacy decision-making by family members, emotional turmoil in and after surrogacy decision-making by family members, and relationships with the patient and surroundings in surrogacy decision-making by family members. These results affirmed the great emotional burden of surrogacy decision-making by family members and suggest the need for support of health care professionals and institutional measures to reduce the burden.

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