Genetic counselors and legal recognition: A made‐for‐Canada approach

  • Deborah M. Lambert
    National Rare Diseases Office Mater Misericordiae University Hospital Dublin Ireland
  • Dimitri Patrinos
    Centre of Genomics and Policy Department of Human Genetics Faculty of Medicine and Health Sciences McGill University Montreal QC Canada
  • Bartha Maria Knoppers
    Centre of Genomics and Policy Department of Human Genetics Faculty of Medicine and Health Sciences McGill University Montreal QC Canada
  • Ma’n H. Zawati
    Centre of Genomics and Policy Department of Human Genetics Faculty of Medicine and Health Sciences McGill University Montreal QC Canada

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<jats:title>Abstract</jats:title><jats:p>Genetic counseling is a fast‐growing profession in Canada. Yet, despite its growth, genetic counseling lacks legal recognition in the majority of Canadian provinces. Legal recognition serves to regulate professions, including genetic counseling, that if not properly regulated, expose the public to the risk of harm. Under Canadian law, there are three models of legal recognition: 1) the constitution of a professional order, 2) inclusion in a professional order, and 3) delegation. This paper explores the practical implications of these different models of legal recognition for genetic counselors. It focuses on the balancing act between protecting the public and the resources required to seek legal recognition under the three different models. With a small number of genetic counselors (<jats:italic>n</jats:italic> = 484, with 89% found in 4 provinces) compared to other professions, the route toward professional regulation for genetic counselors can be challenging. Though legal recognition occurs at the provincial rather than federal level in Canada, we nonetheless advocate for pan‐Canadian discussions that may benefit future pursuits of legal recognition.</jats:p>

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