Dementia wellbeing and COVID‐19: Review and expert consensus on current research and knowledge gaps

  • Kathy Y. Liu
    Division of Psychiatry University College London London UK
  • Robert Howard
    Division of Psychiatry University College London London UK
  • Sube Banerjee
    Faculty of Health University of Plymouth Plymouth UK
  • Adelina Comas‐Herrera
    Department of Health Policy London School of Economics and Political Science Care Policy and Evaluation Centre London UK
  • Joanne Goddard
    Economic and Social Research Council UK Research and Innovation Swindon UK
  • Martin Knapp
    Department of Health Policy London School of Economics and Political Science Care Policy and Evaluation Centre London UK
  • Gill Livingston
    Division of Psychiatry University College London London UK
  • Jill Manthorpe
    NIHR Policy Research Unit in Health and Social Care Workforce King's College London London UK
  • John T. O'Brien
    Department of Psychiatry University of Cambridge School of Clinical Medicine Cambridge UK
  • Ross W. Paterson
    Dementia Research Centre Queen Square UCL Institute of Neurology University College London London UK
  • Louise Robinson
    Population Health Sciences Institute Faculty of Medical Sciences Newcastle University Newcastle UK
  • Martin Rossor
    Dementia Research Centre Queen Square UCL Institute of Neurology University College London London UK
  • James B. Rowe
    Medical Research Council Cognition and Brain Sciences Unit University of Cambridge Cambridge UK
  • David J. Sharp
    Department of Brain Sciences Imperial College London London UK
  • Andrew Sommerlad
    Division of Psychiatry University College London London UK
  • Aida Suárez‐González
    Dementia Research Centre Queen Square UCL Institute of Neurology University College London London UK
  • Alistair Burns
    Division of Neuroscience and Experimental Psychology The University of Manchester Manchester UK

抄録

<jats:title>Abstract</jats:title><jats:sec><jats:title>Objectives</jats:title><jats:p>In response to a commissioned research update on dementia during the COVID‐19 pandemic, a UK‐based working group, comprising dementia researchers from a range of fields and disciplines, aimed to describe the impact of the pandemic on dementia wellbeing and identify priorities for future research.</jats:p></jats:sec><jats:sec><jats:title>Methods</jats:title><jats:p>We supplemented a rapid literature search (including unpublished, non‐peer reviewed and ongoing studies/reports) on dementia wellbeing in the context of COVID‐19 with expert group members' consensus about future research needs. From this we generated potential research questions the group judged to be relevant that were not covered by the existing literature.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Themes emerged from 141 studies within the six domains of the NHS England COVID‐19 Dementia Wellbeing Pathway: Preventing Well, Diagnosing Well, Treating Well, Supporting Well, Living Well and Dying Well. We describe current research findings and knowledge gaps relating to the impact on people affected by dementia (individuals with a diagnosis, their carers and social contacts, health and social care practitioners and volunteers), services, research activities and organisations. Broad themes included the potential benefits and risks of new models of working including remote healthcare, the need for population‐representative longitudinal studies to monitor longer‐term impacts, and the importance of reporting dementia‐related findings within broader health and care studies.</jats:p></jats:sec><jats:sec><jats:title>Conclusions</jats:title><jats:p>The COVID‐19 pandemic has had a disproportionately negative impact on people affected by dementia. Researchers and funding organisations have responded rapidly to try to understand the impacts. Future research should highlight and resolve outstanding questions to develop evidence‐based measures to improve the quality of life of people affected by dementia.</jats:p></jats:sec>

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