Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving
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- Erin E. Kent
- Division of Cancer Control and Population Sciences National Cancer Institute Bethesda Maryland
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- Julia H. Rowland
- Division of Cancer Control and Population Sciences National Cancer Institute Bethesda Maryland
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- Laurel Northouse
- School of Nursing University of Michigan Ann Arbor Michigan
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- Kristin Litzelman
- Division of Cancer Control and Population Sciences National Cancer Institute Bethesda Maryland
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- Wen‐Ying Sylvia Chou
- Division of Cancer Control and Population Sciences National Cancer Institute Bethesda Maryland
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- Nonniekaye Shelburne
- Division of Cancer Control and Population Sciences National Cancer Institute Bethesda Maryland
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- Catherine Timura
- Division of Science Policy and Public Liaison National Institute of Nursing Research Bethesda Maryland
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- Ann O'Mara
- Division of Cancer Prevention National Cancer Institute Bethesda Maryland
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- Karen Huss
- Division of Extramural Science Programs, Office of Extramural Programs National Institute of Nursing Research Bethesda Maryland
説明
<jats:p>Informal/family caregivers are a fundamental source of care for cancer patients in the United States, yet the population of caregivers and their tasks, psychosocial needs, and health outcomes are not well understood. Changes in the nature of cancer care and its delivery, along with the growing population of survivors and their caregivers, warrant increased attention to the roles and demands of caregiving. This article reviews current evidence presented at a 2‐day meeting examining the state of the science of informal cancer caregiving that was convened by the National Cancer Institute and the National Institute of Nursing Research. The meeting sought to define who is an informal cancer caregiver, summarize the state of the science in informal cancer caregiving, and describe both the kinds of interventions developed to address caregiving challenges and the various outcomes used to evaluate their impact. This article offers recommendations for moving science forward in 4 areas: 1) improving the estimation of the prevalence and burden of informal cancer caregiving; 2) advancing the development of interventions designed to improve outcomes for cancer patients, caregivers, and patient‐caregiver dyads; 3) generating and testing strategies for integrating caregivers into formal health care settings; and 4) promoting the use of technology to support informal cancer caregivers. <jats:bold><jats:italic>Cancer</jats:italic> 2016;122:1987–95</jats:bold>. © <jats:italic>2016 American Cancer Society</jats:italic>.</jats:p>
収録刊行物
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- Cancer
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Cancer 122 (13), 1987-1995, 2016-03-17
Wiley