For Better Transition from Pediatric to Adult Care for Epilepsy: A Report and Proposals

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  • てんかんの、小児から成人へのよりよいトランシションをめざして：報告と提言

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We conducted questionnaire surveys on members of the Japanese Society of Child Neurology (JSCN) and Societas Neurologica Japonica (SNJ) regarding carryover of epilepsy patients. While 95% of JSCN members knew the term "carryover", only 46% of SNJ members did, showing a remarkable difference. Sixty-nine% of JSCN members compared with 78% of SNJ members felt difficulties with epilepsy care. The reasons common to both groups were psychiatric/psychological complications and laws/regulations on epilepsy, while JSCN members also responded no adult inpatient facilities, and SNJ members also responded not familiar with epilepsy diagnosis and interpretation of EEG. The factor hindering transition given by JSCN members was no specialist in adult epilepsy nearby, and those given by SNJ members were difficult to have full picture of the disease course from childhood and not familiar with childhood-specific epilepsy syndromes. From the above findings, we propose that cooperation not only between pediatric neurologists and adult neurologists but also with other disciplines such as psychiatrists, collaboration among relevant societies, as well as national education are necessary to achieve better transition from pediatric to adult care for epilepsy patients.<br>

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