Mothers' concerns regarding their cleft palate children

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  • 口蓋裂児についての母親の関心事項の検討

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Abstract

This study was designed to learn what kinds of concers the mothers of cleft palate child had regarding cleft palate problems and how they were initially informed of their child's defect. We used a questionnaire to obtain these date. Sixty-eight mothers of children with cleft lip and/or palate were examined. The examinations were carried out, respectively, at the times of the initial investigation, lip repair, and palatoplasty.<BR>The results were as follows:<BR>1. Initial investigation<BR>1) The mothers who had initially learned of the cleft while they were in the hospital included most of those in the cleft lip group and cleft lip and palate group, but only two-thirds of those in the cleft palate group.<BR>2) In the majority of cases, the mothers were told of the cleft by their obstetrician.<BR>3) Most of the explanations to the mothers involved “diagnosis” and “the availability of remedial surgery.” In the cases of cleft palate, the mothers were also told about “speech difficultie s. ”<BR>2. Mothers' concerns were related to the nature of the defect and child development. The main concerns of the mothers were as follows:<BR>1) At the time of lip repair in the cleft lip group: “hereditary implications, ” “psychosocial and child care problems” and “the having of more children-.”<BR>2) At the time of initial investigation in the cleft lip and/or palate group: “postoperative ploblems: appearance and speech,” “psychosocial and child care problems” and “hereditary implications.”<BR>3) At the time of lip repair and palatoplasty in the cleft lip and palate group: “postope rative problems: appearance and speech” and “hereditary implications.”<BR>4) At the time of palatoplasty in the cleft p alate group: “postoperative problems: speech.”

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