Creating Meaning in Illness in Order to Live without Losing One's Identity : Qualitative Research on Patients with Amyotrophic Lateral Sclerosis

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  • 「病いとともにその人らしく生きる」ための病いの意味づけ : 筋萎縮性側索硬化症(ALS)患者への質的調査を通して
  • ヤマイ ト トモニ ソノ ヒト ラシク イキル タメ ノ ヤマイ ノ イミズケ キン イシュクセイ ソクサク コウカショウ ALS カンジャ エ ノ シツテキ チョウサ オ トオシテ

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Abstract

【Objective】 This study identifies how patients with ALS live without losing their identities and how they create meaning in the illness. 【Methods】 Interviews with eight ALS patients were analyzed and the research outcomes were discussed with two people who cooperated with the research. Furthermore, the research also considered how patients created meaning in the illness in order to live without losing their identities by examining related research. 【Results/Discussion】 It was found that patients adjusted the meaning of their subjective experiences by restructuring their values and identities, even though these may have been originally destroyed by ALS. By adjusting the meaning of their own subjective experiences they were able to shift from originally having created negative meaning in the illness to creating a positive meaning. This restructuring process is an intrinsic change and becomes established if it is a self-induced modification. Upon restructuring their identities patients are able to feel that they have essentially not changed.

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