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- Kambe Yoko
- ALS Care Center, National Hospital Organization Miyagi National Hospital
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- Imai Takashi
- ALS Care Center, National Hospital Organization Miyagi National Hospital
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- Tsubai Fumie
- ALS Care Center, National Hospital Organization Miyagi National Hospital
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- Osumi Etsuko
- ALS Care Center, National Hospital Organization Miyagi National Hospital
Bibliographic Information
- Other Title
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- 難病相談支援センターの相談記録の検討
- ナンビョウ ソウダン シエン センター ノ ソウダン キロク ノ ケントウ
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Abstract
<p>We surveyed consultation records of the Intractable Disease Support Centers across Japan to examine the contents of the consultation sessions and the support measures given. Of the 5,145 consultation sessions that were classified according to diseases, 3,314 sessions were for disease designated as intractable diseases (64.4%) by the Ministry of Health, Labour and Welfare;i.e., neuromuscular diseases, 1,365 sessions (26.5%);immune system disease, 491 (9.5%);and digestive system disease, 417 (8.1%). The consultation issues broadly covered the areas of not only healthcare (28.9%) and nursing care (23.9%) but also the welfare system (12.9%) and employment (14.7%).</p><p> A total of 5,914 support measures were given. The breakdown of measures given by counselors was as follows:2,898 measures (49.0%) for giving explanations of systems or advice according to diseases, 1,141 (19.3%) for“active listening”, and 1,023 (17.3%) for“introducing other counseling services”. Our investigation revealed that the consultations involved diverse issues on a wide range of diseases, a situation that was difficult to be dealt with by using only the knowledge and experience of individual counselors. It was considered preferable to further take measures to improve the quality of counselors and to modify the framework to support them.</p>
Journal
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- The Journal of Japan Society for Health Care Management
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The Journal of Japan Society for Health Care Management 13 (2), 86-90, 2012-09-01
Japan Society for Health Care Management
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Details 詳細情報について
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- CRID
- 1390003825207921280
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- NII Article ID
- 130007891272
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- NII Book ID
- AA12166447
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- ISSN
- 18846807
- 18812503
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- NDL BIB ID
- 024005530
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- Text Lang
- ja
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- Data Source
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- JaLC
- NDL
- CiNii Articles
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- Abstract License Flag
- Disallowed