End-of-Life Care Perceptions by Caregivers in Group Homes

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  • 認知症高齢者グループホーム職員の看取り体験の思い
  • ニンチショウ コウレイシャ グループホーム ショクイン ノ ミトリ タイケン ノ オモイ

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This study explored caregiver perceptions related to experiences of end-of-life (EOL) care at group homes (GH) for elderly people with dementia. A self-administered questionnaire was designed to elicit GH staff perceptions by asking what they feel about their EOL care experiences at GH. Eighty one participants shared their perspectives. Results were classified into seven categories, “Anxiety and tension related to EOL care,” “Regret and condolence,” “Response of care provided,” “Respect for deceased people,” “Pride in providing EOL care,” “Creative view of life and death,” and “Familial sense of loss,”. Although staff members who experienced EOL care felt imperfect, they were satisfied with the care they provided. Moreover, they had positive views in terms of EOL care experiences, which seemed to engender their personal growth. The study also revealed a distinctive view of EOL care in GH, where caregivers felt as if they had lost a family member when they confronted a resident’s death.

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