Suffering of Patients Who are Considered “Mild”: Perception of Physical Decay in Patients with Spinal and Bulbar Muscular Atrophy

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  • 「軽度」とされる患者の困難性——球脊髄性筋萎縮症による身体機能の衰えの感受に着目して——
  • 「軽度」とされる患者の困難性 : 球脊髄性筋萎縮症による身体機能の衰えの感受に着目して
  • 「 ケイド 」 ト サレル カンジャ ノ コンナンセイ : タマ セキズイセイキン イシュクショウ ニ ヨル シンタイ キノウ ノ オトロエ ノ カンジュ ニ チャクモク シテ

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Abstract

<p>It is known that patients whose symptoms are considered “mild” experience suffering in that they are seen as having an unclear role in their interactions with others, as they are not considered either a “sick/disabled person” or a “healthy person.” However, the factors that cause their suffering have not been adequately examined. The purpose of this paper is to explore how suffering arises in patients who are considered “mild” and examine some of the factors that cause it, considering the narrative of a patient with spinal and bulbar muscular atrophy. The results revealed that present suffering arose from the recall of the past self. It found that “the place” of remembering one’s past self causes suffering.</p>

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