Database Research for Stroke

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  • MATSUO Ryu
    Department of Health Care Administration and Management, Graduate School of Medical Sciences, Kyushu University

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Other Title
  • 脳卒中データベース研究の展望
  • ノウソッチュウ データベース ケンキュウ ノ テンボウ

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Description

Database research for stroke have contributed to the development of evidence and the establishment of guidelines for stroke management. In Japan, the Fukuoka stroke registry, a regional cohort̶which provides highly accurate data̶and the Japan stroke data bank̶which includes nationwide comprehensive data̶have been collected through individual questionnaires (as revealed by a conventional epidemiological study). Recently, studies using existing data, such as insurance claims data, have become popular (as revealed by a data-driven epidemiological study). The nationwide survey of acute stroke care capacity for proper designation of comprehensive stroke center in Japan (J-ASPECT study) is assessing the quality of stroke care to close the gap between guidelines and clinical practice using data from the Diagnosis Procedure Combination, developed as a measurement tool to standardize, evaluate, and improve the quality of healthcare in Japan and to clarify the content of acute-phase hospital care. The National Database of Health Insurance Claims and Specific Health Checkups is the largest database globally that facilitates the visualization of stroke care in Japan. Large-scale real-world databases̶such as the Registry of the Canadian Stroke Network and Riks-Stroke̶have been constructed worldwide. In both cases, data are collected without obtaining consent and are linked to existing data, such as administrative data. However, the environment for database research has not been sufficiently developed from the perspective of personal information protection and research ethics in Japan. In this era of medical big data, extensive medical information is automatically recorded electronically. Medical DX (digital transformation) aims to enable the appropriate use of such medical information and linking it with existing data̶such as insurance claims data and administrative data. A large database research utilizing electronic information can change the future of stroke care.

Journal

  • 福岡醫學雜誌

    福岡醫學雜誌 114 (3), 99-108, 2023-09-25

    Fukuoka Medical Association

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