DEVELOPMENT AND VALIDATION OF QUALITY OF LIFE QUESTIONNAIRE FOR PARENT BURDEN OF CHILDREN WITH FOOD ALLERGY

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  • Kawano Toshiaki
    Department of Pediatrics, National Hospital Organization Fukuoka National Hospital
  • Takase Akihiro
    Department of Pediatrics, National Hospital Organization Fukuoka National Hospital
  • Yasunari Daisuke
    Department of Pediatrics, National Hospital Organization Fukuoka National Hospital
  • Motomura Chikako
    Department of Pediatrics, National Hospital Organization Fukuoka National Hospital
  • Ikeda Masanori
    Okayama University School of Medicine Department of Pediatrics, Fukuyama Municipal Hospital
  • Matsui Teruaki
    Department of Allergy, Allergy and Immunology Center, Aichi Children's Health and Medical Center
  • Ogata Mika
    Department of Pediatrics, National Hospital Organization Kumamoto Medical Center
  • Suzuki Shuichi
    Department of Pediatrics, National Hospital Organization Shimoshizu Hospital
  • Tezuka Junichiro
    Department of Allergy and Respiratory Medicine, Fukuoka Children's Hospital
  • Nagao Mizuho
    Allergy Center, National Hospital Organization Mie National Hospital
  • Masumoto Natsuko
    Department of Pediatrics, National Hospital Organization Fukuokahigashi Medical Center
  • Yanagida Noriyuki
    Department of Pediatrics, National Hospital Organization Sagamihara Hospital
  • Ohya Yukihiro
    Allergy Center, National Center for Child Health and Development

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Other Title
  • 食物アレルギー児の養育者自身のQuality of Life質問票開発と検証
  • ショクモツ アレルギージ ノ ヨウイクシャ ジシン ノ Quality of Life シツモンヒョウ カイハツ ト ケンショウ

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Abstract

<p>Objective: Quality of life (QOL) questionnaires for parents of children with food allergies have been developed in the United States and Europe. However, no original Japanese QOL questionnaire has been developed till date. We aimed to develop an original questionnaire to evaluate the QOL in parents of children with food allergies in Japan.</p><p>Methods: We collected QOL-related questions from parents of children with food allergies aged 0-15 years, and created a primary questionnaire. Responses to the primary questionnaire were obtained from the parents again, and question items were reduced using factor analysis to create a secondary questionnaire comprising eight items. In addition to the secondary questionnaire, responses to the Food Allergy QOL Questionnaire-Parent Form (FAQLQ-PF) Japanese version, Parent reported Health-Related QOL in children and adolescents (KINDL) and Health-related QOL (SF-8) were obtained from parents to assess the validity of the secondary questionnaire.</p><p>Results: A total of 407 parents completed all questionnaires. The secondary questionnaire scores were positively correlated with those of FAQLQ-PF and weakly negatively correlated with the KINDL and SF-8 mental component summary scores. Parents of children with food allergies with ≥3 culprit foods or severe reactions to daily foods, a history of anaphylaxis, and those carrying adrenaline autoinjectors scored higher and had lower QOL.</p><p>Conclusion: The developed original questionnaire is a valid QOL questionnaire for Parents of children with food allergies.</p>

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