長期在宅介護を行ったALS罹病者遺族の生活環境の再編過程に関する研究

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  • 亀屋 惠三子
    神戸市立工業高等専門学校都市工学科　准教授・博士（工学）
  • 足立 啓
    和歌山大学システム工学部　教授・工博

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タイトル別名
  • STUDY OF THE RESTORATION PROCESS OF THE LIVING ENVIRONMENTS OF BEREAVED FAMILIES THAT HAD UNDERTAKEN LONG-TERM AT-HOME CARE FOR ALS PATIENTS
  • チョウキ ザイタクカイゴ オ オコナッタ ALSリビョウシャ イゾク ノ セイカツ カンキョウ ノ サイヘン カテイ ニ カンスル ケンキュウ

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 By focusing on the changes that can be made to houses to establish a point from which bereaved families can return to their communities, with the aim of clarifying the course of house restoration from a nursing to a living environment, we conducted a questionnaire survey of affected families, and a case-based survey to understand the space available in their homes after undertaking the long-term at-home care for an ALS patient.<br> 1) After the death of an ALS patient, the way in which a house is restored can be roughly classified into four types, namely, restoration, partial restoration, reconstruction, and no change. Most bereaved families undertook reconstruction. This trend was more frequently seen in urban LDK-type houses. 2) Family members, who had lost their spouses after long-term at-home care, showed a marked tendency to use a living room or habitable room adjacent to the living room as the room for Buddhist rituals or to display photos of their deceased spouse. Consequently, we can conclude that the home environment is such that the location relationship remains unchanged even after the death. After the death of an ALS patient is formed by subconsciousness to a residence, the length of the recuperation period and relationship with how to live and people who passed away.

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