Emotional Experiences and Anticipatory Grief of Caregivers of a Parent or Spouse Dying at Home

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  • 在宅で親や配偶者の看取りを行う介護者の情緒体験と予期悲嘆
  • ザイタク デ オヤ ヤ ハイグウシャ ノ ミトリ オ オコナウ カイゴシャ ノ ジョウチョ タイケン ト ヨキ ヒタン

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Abstract

Purpose: This study investigated the emotional experiences of caregivers for family members dying at home in order to identify the factors that constitute anticipatory grief.<br>Methods: Data were collected using semi-structured interviews conducted on 10 bereaved families in which a family member had died at home. The recorded interviews were qualitatively analyzed using the KJ method. After analyzing the data individually according to each case, a synthetic analysis was conducted in order to create a diagram of the factors of anticipatory grief.<br>Results: Six factors that constitute anticipatory grief were identified. First, we extracted the core factor:<br>i. precedent anxiety regarding bereavement<br>In addition, the following five factors were found:<br>ii. a sense of living in another world; thoughts are being controlled, a sense of being separated, and a sense of estrangement<br>iii. a feeling to result by mourning over death of the loss; spiritual pain<br>iv. a sense of anger without an outlet; a grudge/regrets/anger towards the disease<br>v. pressure caused by coordinating care at home<br>vi. large physical burden caused by prioritizing caregiving over other domestic responsibilities <br>We also found the following two factors of the emotional experience of the caregivers following bereavement:<br>i. a positive feeling regarding caring<br>ii. a sense of guilt that cannot be alleviated; regret regarding the care provided and judgments made<br>Conclusion: The present results will be used for the future development of an “anticipatory grief assessment tool.”

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