The Experiences of Females with Autism Spectrum Disorders: The Social Adaptation Process and Factors Which “Veil” Their Disorders

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  • Sunagawa Mebuki
    Graduate School of Education, Tokyo University Japan Society for the Promotion of Science

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  • 自閉症スペクトラム障害の女性は診断に至るまでにどのように生きてきたのか：障害を見えにくくする要因と適応過程に焦点を当てて
  • ジヘイショウ スペクトラム ショウガイ ノ ジョセイ ワ シンダン ニ イタル マデ ニ ドノ ヨウ ニ イキテ キタ ノ カ : ショウガイ オ ミエ ニクク スル ヨウイン ト テキオウ カテイ ニ ショウテン オ アテテ

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Abstract

This study investigated the experiences and factors that affect adult females with Autism Spectrum Disorders (ASD). Twelve Japanese females who were diagnosed in their adulthood (after age 20) were interviewed and the data were analyzed using the grounded theory approach (GTA). The results suggest that four different social factors may function as a “veil” that conceals adult females' ASD. Under these “veils,” they appeared to develop social adaptation skills that at the same time functioned as yet another “veil.” In addition, because of these women's superficial social adaptation skills, other people may overlook their low self-esteem and other difficulties. This study highlights the need to understand the experiences of females with ASD, in consideration of differences from their male counterparts.

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