LIVING AND DYING WITH DIGNITY: THE SELF-DECISION RIGHT OF AMYOTROPHIC LATERAL SCLEROSIS PATIENTS WHO REFUSE LIFE-PROLONGING TREATMENT

DOI

Bibliographic Information

Other Title
  • 延命処置を望まない筋萎縮性側索硬化症（ＡＬＳ）患者に関する考察：尊厳ある生と死そして自己決定権
  • LATERAL SCLEROSIS PATIENTS WHO REFUSE LIFE-PROLONGING TREATMENT
  • 尊厳ある生と死そして自己決定権

Description

Amyotrophic lateral sclerosis (ALS) is an intractable neurological disease. Generally, its natural course without ventilator support is limited within several years. Although life can be prolonged by mechanical ventilation, it is not always easy to continue such a life both for patients and their family members, who are often primary care givers. In Japan, to improve QOL of the ALS patient, a great deal of effots have been made such as improving medical skill, promoting social support, and preparing suitable medical care systems As a consequence, the number of ALS patients living with a respirator increase overwhelmingly in comparison with other countries, The number of home care patients also increased. On the contraly there are still the patients who do not want life sustaining medical treatment especially mechanical ventilation. For those patients we should build up the palliative medicine, promote hospice care to assure the right of living and/or dying with dignity. And it also needs to make the social consensus that admit a patients' right to self-determination respecting their autonomous decision.

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Details 詳細情報について

  • CRID
    1390282681292257920
  • NII Article ID
    130004316397
  • DOI
    10.11261/iryo1946.59.353
  • ISSN
    18848729
    00211699
  • Text Lang
    ja
  • Data Source
    • JaLC
    • CiNii Articles
  • Abstract License Flag
    Disallowed

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