神経難病医療ネットワークにおける難病医療専門員のコーディネート機能

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  • Activities and Functions of the Nurse Coordinator in the Network for Intractable Neurological Diseases.
  • シンケイ ナンビョウ イリョウ ネットワーク ニ オケル ナンビョウ イリョウ センモンイン ノ コーディネート キノウ

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Background : For patients with severe intractable neurological diseases such as amyotrophic lateral sclerosis (ALS) to be hospitalized when their conditions become worse, the Gunma prefectural government established a network of 65 hospitals in 1999. A nurse coordinator has been assigned to the Department of Neurology at the Gunma University Hospital, the center hospital for the network.<BR>Objectives and Methods : We analyzed records the coordinator kept from 1999 to 2001 and classified coordinating activities in this network.<BR>Results and Conclusions : The coordinator responded to 601 consultations on 246 patients given by patients, their families, public health nurses., and doctors. Coordinating activities were classified into5 categories : giving specialized and specific advice at each consultation, coordinating patient, hospitalization following up patients at the center hospital and coordinate local services, supporting patients followed by public health centers and enlarging local care capacity through activities such as studies and seminars. We found that the coordinator at the center hospital has been functioning very well in this network. Coordinators such as those in this network are indispensable for sound care systems for intractable neurological diseases.

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