Genetic Counseling for Retinoblastoma: What We Learned by Introducing SPIKES through Small Group Roleplaying

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  • Takeda Yuko
    Faculty of Nursing and Medical Care, Keio University
  • Murakami Yoshie
    Department of Adult Nursing, St. Luke's College of Nursing
  • Tamura Kazuo
    Institute for Advanced Medical Sciences, Laboratory of Hereditary Tumor, Hyogo College of Medicine
  • Yoshida Teruhiko
    National Cancer Center Research Institute
  • Tsunematsu Yukiko
    National Center for Child Health and Development
  • Nomizu Tadashi
    Department of Surgery, Hoshi General Hospital
  • Kosugi Shinji
    Department of Clinical Genetics & Department of Medical Ethics, Kyoto University Postgraduate School of Medicine
  • Tomita Naohiro
    Department of Surgery, Kansai Rosai Hospital
  • Uchino Shinya
    Department of Surgery, Noguchi Thyroid Clinic and Hospital Foundation
  • Gondo Nobuhisa
    Second Department of Surgery, Hyogo College of Medicine
  • Akagi Suguru
    Laboratory of Cancer Genetic Diagnosis, Saitama Cancer Center
  • Arai Masami
    Japanese Foundation for Cancer Research Hospital, Familial Cancer Center
  • Tamura Chieko
    Department of Clinical Genetics and Molecular Medicine, National Center for Child Health and Development
  • Mihara Kimie
    Department of Clinical Genetics and Molecular Medicine ·Department of Nursing, National Center for Child Health and Development
  • Izumi Hideko
    Department of Nursing, National cancer center hospital
  • Ohmatsu Shigehiro
    Counseling room for patients and family, National cancer center hospital
  • Noma Chikako
    Department of Surgical Oncology, Osaka University Graduate School of Medicine
  • Sugano Kokichi
    Tochigi Cancer Center Research Institute

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Other Title
  • 網膜芽細胞腫の遺伝カウンセリングの展開—ロールプレイにSPIKES を取り入れたグループワークの発表内容から—

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Abstract

第6 回家族性腫瘍カウンセラー養成セミナーにおけるグループワークで，どのように網膜芽細胞腫の遺伝カウンセリングのロールプレイが展開されたかについて，16 グループのディスカッションの発表内容を分類し，SPIKES の六つのステップに関する内容がすべて含まれていることが確認された．ディスカッションは疾患の特殊性や医療の現状にまで踏み込んだ深い内容であり，網膜芽細胞腫の遺伝カウンセリング実践の本質に迫るものであったことから，本セミナーはカウンセラーを目指す者だけではなく実践者にとっても能力向上に有意義であると考えられた．

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