The experiences of adolescents with severe motor and intellectual disabilities and their parents before and after graduation from special needs school.

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  • Nakayama Yuichi
    Faculty of Nursing, Setsunan University, Hirakata, Osaka Minoh School for special needs education, Minoh, Osaka
  • Niinomi Kazuteru
    Division of Health Sciences, Graduate School of Medicine, Osaka University, Suita, Osaka
  • Takashima Yuko
    Division of Health Sciences, Graduate School of Medicine, Osaka University, Suita, Osaka
  • Kubota Makiko
    Minoh School for special needs education, Minoh, Osaka
  • Nakajima Ruriko
    Minoh School for special needs education, Minoh, Osaka
  • Yamazaki Akemi
    Division of Health Sciences, Graduate School of Medicine, Osaka University, Suita, Osaka

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  • 重症心身障害児（者）とその養育者の特別支援学校卒業前後の体験
  • ジュウショウ シンシン ショウガイジ(モノ)ト ソノ ヨウイクシャ ノ トクベツ シエン ガッコウ ソツギョウ ゼンゴ ノ タイケン

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Abstract

This study aimed to describe the experiences of adolescents with severe motor and intellectual disabilities (SMID) and their parents before and after graduation from special needs school. We conducted semi-structured interviews with 15 parents of adolescents with SMID approximately 5 years after their children's graduation from a special needs school, and then analyzed the transcripts qualitatively and inductively. Adolescents with SMID included 10 males and 5 females (age from 19 to 24 years). Parents comprised 1 male, 13 females, and 1 couple (age from 45 to 61 years). The interviews were, on average, 103 minutes in duration (SD = 46.64). We identified 7 categories that describe the experiences of adolescents with SMID and their parents before and after graduation. Parents desire that adolescents with SMID live fulfilling lives and have continued to raise them, supporting each other with friends in the same situation. Parents wished their child would live a fulfilling life and have continued to raise the child in mutual support with other parent friends. Adolescents with SMID attended a special needs school, leading a fulfilling school life. After graduation, differences emerged in the life of children with SMID depending on the health of the child and the degree of social resource utilization; there were also differences in the life of the parent depending on the degree of social resource utilization. Currently, parents can't decide to let their child go while being concerned about the future of their child.

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