“Wavering Feelings”: Surrogate Decision-Making Regarding Gastrostomy on Behalf of Elderly Patients Who Cannot Decide for Themselves

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  • 意思決定能力を欠如した高齢患者の胃瘻造設の代理意思決定をめぐる「揺らぎ」に関する研究――家族の語りの分析を通して――
  • イシ ケッテイ ノウリョク オ ケツジョ シタ コウレイ カンジャ ノ イロウゾウセツ ノ ダイリ イシ ケッテイ オ メグル 「 ユラギ 」 ニ カンスル ケンキュウ : カゾク ノ カタリ ノ ブンセキ オ トオシテ

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Abstract

<p>This study considered the circumstances surrounding the “wavering feelings” of family members who made decisions regarding gastrostomy as surrogates of elderly patients based on the “family narrative.” The researcher conducted interviews with the families of three elderly patients who had impaired decision-making abilities. The survey was designed to analyze how “wavering feelings” in family members are generated, maintained, and fluctuates in relation to the lives of patients. The survey results further revealed two characteristics of “wavering feelings.” The first characteristic was that several factors influenced “wavering feelings,” and the second was that fluctuations in “wavering” are related to a “continuous relationship with the patient” and several “factors influencing the waver.” A major conclusion of the study was that while thinking about the patient’s well-being, all families continued to waver. This suggests that surrogate decision-making support requires an acknowledgment of the family’s continued wavering during the process while considering the mental burden on the family.</p>

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