Quality of Life Characteristics of Patients with Behçet’s Disease Participating in Behçet’s Disease Patient Associations

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  • Okada Junya
    聖カタリナ大学人間健康福祉学部看護学科

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  • ベーチェット病患者会に参加しているベーチェット病患者のQOLの特徴
  • ベーチェットビョウ カンジャカイ ニ サンカ シテ イル ベーチェットビョウ カンジャ ノ QOL ノ トクチョウ

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Abstract

<p>A study was conducted to clarify the quality of life (QOL) characteristics of patients with Behçet’s disease participating in Behçet’s disease patient groups. The results revealed significantly higher subjective QOL scores for patients who actively participated in patient groups compared with passive patients. Furthermore, subjective QOL scores were significantly higher for patients satisfied with patient groups compared with those who were dissatisfied. SF-36 summary scores were significantly higher for active participants in patient groups than for passive participants. SF-36 summary scores were also significantly higher for patients satisfied with patient groups than for dissatisfied patients. The aforementioned findings revealed a high QOL for patients with Behçet’s disease who actively participate in and are satisfied with patient groups.</p>

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