小児肝移植患者の青年期のQOLに関する実態調査

DOI
  • 金澤 郁恵
    国立研究開発法人国立成育医療研究センター臓器移植センター
  • 佐島 毅
    国立大学法人筑波大学大学院人間総合科学研究科
  • 福田 晃也
    国立研究開発法人国立成育医療研究センター臓器移植センター
  • 内田 孟
    国立研究開発法人国立成育医療研究センター臓器移植センター
  • 阪本 靖介
    国立研究開発法人国立成育医療研究センター臓器移植センター
  • 笠原 群生
    国立研究開発法人国立成育医療研究センター臓器移植センター

書誌事項

タイトル別名
  • Survey on the quality of life of adolescent pediatric liver transplant recipients

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抄録

<p>【Objective】 The aim of the present study was to evaluate actual state of quality of life and validate the support needed during adolescence among pediatric liver transplant recipients.</p><p>【Methods】 During the study period, 99 liver transplant recipients in the National Center for Child Health and Development were enrolled and participated in a questionnaire survey, including research into school and work status, interaction among recipients, surgical wounds, and adherence to medication.</p><p>【Results】 Responses from 73 among the 99 recipients and their parents were obtained. In school life in junior high school and above, the effects of tardiness, early leaving, and absence from school due to hospital visits and hospitalization, and communication issues with the school were indicated. Sixty percent of the junior and senior high school students were concerned about "surgical wounds" and "physical condition," suggesting the need for consideration of surgical wounds and presentation of treatment options regardless of gender. The results also suggested that there was an association between non adherence to medication, and worsening liver function. Regarding the support needed before and after transplantation and future concerns of pediatric liver transplant recipients as adolescents, "physical condition" accounted for the largest proportion, followed by "love, marriage, and childbirth" and "employment".</p><p>【Conclusion】 Medication adherence in adolescents after pediatric liver transplantation was indicated by changes in life background in adulthood, understanding of the importance of medication management, and the burden of medical costs. It is an important issue for the future to enhance mental support that takes into consideration the characteristics of adolescents and young adults, in addition to support that accompanies anxiety and daily concerns before surgery.</p>

収録刊行物

  • 移植

    移植 58 (2), 93-101, 2023

    一般社団法人 日本移植学会

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