Feelings of siblings living with a child with severe motor and intellectual disabilities

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  • Numaguchi Chieko
    Faculty of Nursing, Tokiwa University, Mito, Ibaraki
  • Nishigaki Kaori
    Department of Child & Family Health Nursing, Graduate School of Nursing Sciences, St. Luke's International University, Chuo, Tokyo
  • Wakimizu Rie
    Division of Health Innovation and Nursing, Faculty of Medicine, University of Tsukuba, Tsukuba, Ibaraki
  • Fujioka Hiroshi
    Department of Nursing, Faculty of Health Sciences, Ibaraki Prefectural of Health Sciences, Inashiki, Ibaraki
  • Sato Naho
    Graduate School of Nursing, Chiba University, Chiba, Chiba

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Other Title
  • 重症心身障害児と共に生活するきょうだいの想い
  • ジュウショウ シンシン ショウガイジ ト トモニ セイカツ スル キョウダイ ノ オモイ

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Abstract

This study aimed to identify the kinds of feeling that siblings of a child with severe motor and intellectual disabilities (SMID) living at home have towards SMID children, themselves, and their parents and grandparents while living with their family, and to examine how nurses can support these siblings. We conducted semi-structured interviews with eleven siblings aged 12 years or over of an SMID child. Our results showed that siblings were ambivalent in recognizing the confusion and annoyance of situations caused by disabilities, while taking their brother/sister with SMID as ordinary siblings. They showed their gratitude to his parents and grandparents, envisaging own future apart from their brother/sister with SMID. Our study suggests the need for support the siblings' own life course selection while understanding their siblings' feelings and conflicts and coordinating their feelings with their families.

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