Communication and social activities of patients with amyotrophic lateral sclerosis living at home

DOI
  • Kojima Kaori
    Department of Community Health and Preventive Medicine, Hamamatsu University School of Medicine Kojima Dental Clinic
  • Imada Yukari
    Nanami Corporation
  • Morimoto Jyunko
    Nanami Corporation
  • Fuji Emiko
    Nanami Corporation
  • Ashiga Hirokazu
    School of Health Sciences at Narita Department of Speech and Hearing Sciences, International University of Health and Welfare
  • Fujii Hiroyuki
    Faculty of Social Welfare, Nagano Univercity Department of Rehabilitation Saku Central Hospital

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Other Title
  • 在宅生活を送る筋萎縮性側索硬化症患者のコミュニケーションおよび社会的活動

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Description

<p>Objectives : Many patients with amyotrophic lateral sclerosis (ALS) are mainly cared for at home, and communication support is one of the most important roles. We investigated the actual situation of communication in ALS patients living at home.</p><p>Methods : Eight ALS patients were included in the study. Based on their records, we conducted a basic survey of physical and mental functions. Next, we interviewed the ALS patients about their use of communication methods.</p><p>Results : The mental state of the patients was improved by the use of a communication device. However, there were differences in smoothness depending on the interaction partner and difficulties in operating the communication device.</p><p>Discussion : It is desirable to maintain social interaction and communication opportunities for ALS patients by securing an appropriate means of communication.</p>

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