Status quo of prosthesis care by children with retinoblastoma undergoing enucleation and care learning

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  • 網膜芽細胞腫の患児における幼児期からの義眼のセルフケアの実態と獲得過程

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<p>Children with retinoblastoma (RB) undergoing enucleation start wearing a prosthetic eye and thus need to learn prosthesis care. The purpose of this study was to identify the status quo of artificial eye care in children with RB and the difficulty faced with learning prothesis care during the learning process. Semi-structured interviews were conducted with 18 mothers of children with RB aged 3 to 10 years undergoing enucleation and who are learning or have mastered prosthesis care. Categories and subcategories were extracted using a qualitative descriptive design. The median (min.–max.) age of the mothers was 38 (35–46) years. The median (min.–max.) age of the children at enucleation was 19 (1–59) months. As the status quo, 33 categories were extracted from 91 subcategories, including the following: “Encouraging a child when they voluntarily try to tend to their artificial eye”, “Encouraging children to understand the purpose of care”, “Removing the artificial eye with a suction cup”, “Washing and wiping clean the prosthesis after use during the day”, and “Taking good care of one’s own sense during wearing/removal of the prosthesis”. Prosthesis care included the preparation of the prosthesis, wearing/removal, maintenance of cleanliness, prevention of damage and loss down the drain, and privacy protection. Various ways to care for prosthesis were developed. Mothers faced the fear of losing the eye and had difficulty encouraging their children to understand and partake in prosthetic eye care. This suggests a need for education on eye conditions and methods of care according to patients’ lives during hospitalization after enucleation and for support to facilitate learning of the care process in a manner that respects children’s independence.</p>

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