Qualitative study on perceptions of people with Lynch syndrome

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  • Ueda Mayumi
    Ibaraki Prefectural Center Hospital, Ibaraki Cancer Center
  • Aoki Mikiko
    Graduate School of Nursing Science, St Luke’s International University Center for Medical Genetics, St Luke’s International Hospital
  • Shimabukuro Rinshu
    Graduate School of Nursing Science, St Luke’s International University Center for Medical Genetics, St Luke’s International Hospital Department of General Pediatrics & Interdisciplinary Medicine, National Center for Child Health and Development

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  • Lynch症候群の人々が置かれている状況に対する認識に関する質的研究

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<p>　Three cancer patients diagnosed with Lynch syndrome (LS) were interviewed online using semi-constructive questioning techniques to explore and elucidate their perceptions of individual circumstances. The results of the analysis yielded four themes, along with seven corresponding categories and 20 subcategories: 1）Preparedness and anxiety about the possibility of developing cancer in one's lifetime, 2）Responsibility and advocacy for children's risk perception and autonomous, 3）Reaching out to others and collaboration, and</p><p>4）Establishing a self while living with Lynch syndrome. The participants not only recognized that they were prepared for and had to come to terms with the fact that they had to live with both heredity and cancer, but they also viewed their lives with LS in a positive light, finding value and purpose in their family, work, and hobbies, and establishing themselves. It was also suggested that understanding from others and the development of good relationships may motivate LS to take care of their health.</p>

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