Paradox of Diagnosis: The Positive Effects and Limitations of Diagnosis in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia (FM) Sufferers

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  • 診断のパラドックス——筋痛性脳脊髄炎／慢性疲労症候群及び線維筋痛症を患う人々における診断の効果と限界
  • 診断のパラドックス : 筋痛性脳脊髄炎/慢性疲労症候群及び線維筋痛症を患う人々における診断の効果と限界
  • シンダン ノ パラドックス : キンツウセイ ノウ セキズイエン/マンセイ ヒロウ ショウコウグン オヨビ センイキンツウショウ オ ワズラウ ヒトビト ニ オケル シンダン ノ コウカ ト ゲンカイ

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Abstract

<p>Diagnosis is a topic of discussion in recent studies on contested illnesses. Without an accurate medical diagnosis, sufferers face the risk that people may think they are malingering or faking. Therefore, receiving a diagnosis can be a critical event for sufferers because it legitimizes their illness. This paper explores how diagnosis impacts the illness experience of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) or fibromyalgia (FM) sufferers. The findings can be divided into the positive effects and limitations of diagnosis. Positive effects of diagnosis include achieving relief because of the legitimation of suffering and liberation from guilt; however, diagnosis posits several shortcomings. Often, despite being diagnosed, others fail to recognize the sufferers’ condition as a serious disease or as a disease at all. This paradox of diagnosis highlights the significance of delegitimizing sufferers’ experiences and the vulnerability of legitimate diagnosis.</p>

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