The Determinants of the Choice for Genetic Testing in Japanese Ovarian Cancer Patients

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  • Matsutani Nao
    National Hospital Organization Kyushu Cancer Center
  • Miyashita Mika
    Div ision of Nursing Science, Graduate School of Biomedical and Health Sciences, Hiroshima University
  • Niitani Mayumi
    Div ision of Nursing Science, Graduate School of Biomedical and Health Sciences, Hiroshima University

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  • 卵巣がん患者の遺伝子検査を受けることに対する希望

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The purpose of this study was to clarify the determinants whether ovarian cancer patients choose genetic testing or risk-reducing surgery and their potential needs relating to them. Semi-structured interviews were done for five ovarian cancer patients. They mentioned that age, hope for pregnancy, marital status, cost and easiness of testing and availability of the prophylactic methods such as vaccines are important in decision-making for genetic testing. In regard to applying genetic testing to their daughters or granddaughters, both positive and negative opinions were collected. Some subjects expressed their hope that genetic testing will be covered by the system of National Health Insurance. In risk-reducing surgery, age, hope for pregnancy and menopausal state were pointed out as important determinants. The results of this study suggest that ovarian cancer patients need supports individualized according to their variables such as age or marital status, and that detailed information also needs to be provided, according to their values and needs. It is also suggested that a system in which genetic testing and risk-reducing surgery are available for all patients who need them is of urgent necessity.

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