DEVELOPMENT AND EVALUATION OF DECISION AID REGARDING THE CONTRALATERAL RISK REDUCTION MASTECTOMY FOR JAPANESE HEREDITARY BREAST AND OVARIAN CANCER SYNDROME PATIENTS

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  • INUZUKA Mayuko
    Breast Center, Showa University Hospital
  • NAKAMURA Seigo
    Breast Center, Showa University Hospital Department of Surgery, Division of Breast Surgical Oncology, Showa University School of Medicine

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Other Title
  • 遺伝性乳癌卵巣癌症候群患者に対する対側リスク低減乳房切除術に関する意思決定支援ツール作成と本邦における導入可否の検討
  • イデンセイ ニュウガン ランソウ ガン ショウコウグン カンジャ ニ タイスル タイガワ リスク テイゲン チブサ セツジョジュツ ニ カンスル イシ ケッテイ シエン ツール サクセイ ト ホンポウ ニ オケル ドウニュウ カヒ ノ ケントウ

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Abstract

Contralateral risk reducing mastectomy （CRRM） is an option for hereditary breast and ovarian cancer syndrome （HBOC） patients. The purpose of this study was developing and evaluating decision aid regarding the contralateral risk reduction mastectomy for Japanese HBOC patients. We developed the decision aid for CRRM of all 20 pages in brochure format. Using a questionnaire, 16 medical staff （10 physicians and 6 nurses） involved in clinical practice of HBOC evaluated the utility of this decision aid. As for the decision aid developed in this research, 93.8％ of respondents answered that the balance of information was “just right.” Regarding the usefulness for decision making, 53.3％ of respondents answered “extremely useful” and 46.7％ answered “moderately useful.” In addition, as for the intention regarding offering the tool for the patients, 73.3％ of respondents answered “extremely willing.” The decision aid developed in this research was evaluated by medical staff as helping HBOC patients, who are considering undergoing CRRM, to make a convincing decision. To be used in clinical practice, future research should quantitatively evaluate the degree of influence on the patient’s decision making by using this decision aid.

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