Family Caregivers’ Responses to Behavioral and Psychological Symptoms of Older People with Dementia Who are Outpatients or Hospitalized at Hospitals Specializing in Dementia: A Qualitative Content Analysis

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  • Teraoka Takako
    Graduate School of Health Management, Keio University Department of Nursing, Seitoku University
  • Fukahori Hiroki
    Faculty of Nursing and Medical Care, Keio University

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  • 認知症専門病院を受診・入院している認知症高齢者の家族介護者が行う行動・心理症状への対応：質的内容分析
  • ニンチショウ センモン ビョウイン オ ジュシン ・ ニュウイン シテ イル ニンチショウ コウレイシャ ノ カゾクカイゴシャ ガ オコナウ コウドウ ・ シンリ ショウジョウ エ ノ タイオウ : シツテキ ナイヨウ ブンセキ

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Abstract

<p>Purpose: To clarify family caregivers’ responses to behavioral and psychological symptoms of older people with dementia who are outpatients or hospitalized at hospitals specializing in dementia.</p><p>Methods: We conducted semi-structured interviews with 16 family caregivers of older people with dementia. The method described by Elo and Kyngäs (2008) was used for qualitative content analysis of the data obtained via the interview.</p><p>Results: The analysis identified four themes: «exploration for responses to BPSD», «developmental responses», «oppressive responses», and «responses leading to isolation». These themes were composed of 16 categories, including [uncontrollable reprimands to the caregiver] and [restraint on care recipient’ activities]. Family caregivers’ responses included both «developmental responses», such as [acquisition of tips on caregiving for the care recipient] by sharing effective responses with people around them, and «oppressive responses», such as rebuke, restraint. «responses leading to isolation» were observed in some cases in which [the care recipient was kept secret from people around the family] and caregiving involved self-sacrifice.</p><p>Conclusion: Appropriate support for family caregivers with regard to «oppressive responses», which can violate care recipients’ dignity, should prevent abuse and isolation.</p>

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