Lifestyle problems and coping behaviors among adolescent patients after restorative proctocolectomy ileal pouch-anal anastomosis for ulcerative colitis

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  • 潰瘍性大腸炎術後の思春期患者における生活上の困難と対処行動
  • カイヨウセイ ダイチョウエン ジュツゴ ノ シシュンキ カンジャ ニ オケル セイカツ ジョウ ノ コンナン ト タイショ コウドウ

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Abstract

<p> Minor fecal incontinence or soiling can occur after restorative proctocolectomy with ileal pouch-anal anastomosis (IPAA) for ulcerative colitis. As these problems affect the lifestyles of patients, the present study aimed to identify lifestyle problems and coping behaviors among adolescent patients and to examine nursing practices for life after hospital discharge. A semi-structured interview method was used to identify lifestyle problems and coping behaviors among adolescent patients. Subjects were four adolescent patients who had undergone IPAA for ulcerative colitis within 3 years previously. The data collected during interviews were analyzed qualitatively and inductively. Analysis revealed the following lifestyle problems: “daily life with fecal incontinence or soiling, pain, and itching”; “feel bothersome to take health behavior”; “can’t spend the same school life as my friends”; “behind on study”; “difficulty in gaining an understanding from school teachers about themselves with disease”; “worries about the future”. Coping behaviors were “to act conscientiously to control symptoms”; “to spend life in recovery anticipating potential problems that could arise”; “to carry on with school life without forcing oneself, depending on symptoms,” and “to catch up on work that I have fallen behind on”; “act not to get noticed by a friends”; “to seek advice from others when in trouble”. Looking ahead to life after discharge, assistance with coordination with schools and provision of information is needed from the time patients enter the hospital for IPAA.</p>

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