Experiences of a Child’s Sibling with Congenital Heart Disease: Life Story

DOI

Bibliographic Information

Other Title
  • 先天性心疾患患者のきょうだいの経験―ライフストーリーの語りから―

Abstract

<p>To clarify the experiences of a child’s sibling with congenital heart disease (CHD), the life narrative approach was used to conduct and analyze a semi-structured interview with Miss A, who is in her 20s, based on the sibling’s story. She had a brother with CHD who was three years younger than her. As a child, she had a strong negative image of being a child’s sibling with CHD, and felt that her parents were absent and prioritized her brother over her. However, she gained a deeper comprehension of her brother’s CHD. Additionally, she thought about her mother’s feelings and began to appreciate her. As a result, her perception of the caring role for her brother changed. She started to perceive her circumstances more optimistically as time went on. In addition, she would like to cooperate with him as a family member in the future. Each family has its own role. By proactively understanding the family as a whole, we may help enhance the family’s dynamics. A child with CHD has a variety of effects on the siblings and brings the family together.</p>

Journal

Keywords

Details 詳細情報について

  • CRID
    1390862809659834752
  • DOI
    10.60320/jarfn.29.0_14
  • ISSN
    27588424
    13418351
  • Text Lang
    ja
  • Data Source
    • JaLC
  • Abstract License Flag
    Allowed

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